Living with PI

A blog full of stories about living with a primary immunodeficiency (PI). PI Patients share their learning, tips, and tricks for making the most of life with a rare and chronic disease.

Lisa Massey 2/3/22 Lisa Massey 2/3/22

Measured Risk

Nancy Dalin-Peters 1/9/22 Nancy Dalin-Peters 1/9/22

Work in Progress

Colin Seal 1/3/22 Colin Seal 1/3/22

2021 was Hard

Lisa Massey 12/22/21 Lisa Massey 12/22/21

When Nothing Feels the Same

Lisa Massey 6/27/20 Lisa Massey 6/27/20

On Losing Laura

Colin Seal 6/17/20 Colin Seal 6/17/20

2020 - The Year of Vulnerability

Colin talks about what 2020 has meant to him so far and how he is trying to be more vulnerable to help himself do better and be better.

Lisa Massey 2/7/20 Lisa Massey 2/7/20

Let’s Talk Treatments

Lisa breaks down some of the treatment options for how to do your Ig therapy as well as options as to where you can do your Ig therapy.

Lisa Massey 10/12/19 Lisa Massey 10/12/19

One Drug: Many Uses

Lisa talks out more ways that the Primary Immunodeficiency community can examine how to build guidelines for the long term to keep supply issues from happening.